Telemedicine for Ketogenic Dietary Treatment in Epilepsy and Inherited Metabolic Diseases: Survey of Health Care Professionals

Abstract

In refractory epilepsy and inherited metabolic disorders, Ketogenic Dietary Therapies (KDT) are established non-pharmacological treatments. Telemedicine might contribute to tackle various challenges related to KDT complexity and the respective target diseases. A questionnaire on the current use and future requirements was provided for health care professionals working in neuropediatrics, inherited metabolic diseases and nutrition within the region of German speaking countries. Distribution was facilitated via an established network. Response rate was 83% (24/29). Respondents were physicians (63%) and experts from the field of nutrition (37%). Telemedicine use in any way was reported by 71%. For future telemedicine aids, provision of digital patient information and aspects regarding ketone body, seizure and growth monitoring were ranked highest, while visualization of blood sugar and sensor integration were rated less relevant. Caution regarding legal aspects (liability), reimbursement and technical integration within the current hospital information system was addressed proactively by participants.