Redes sociais, aplicativos e vídeos para pessoas com estomia intestinal, traqueostomia e cuidadores: das redes informais para as comunidades de prática

Abstract

This article seeks to describe the evidence on social networks as informal online networks aimed at people with tracheostomy, intestinal ostomy and their caregivers, providing evidence of how online Communities of Practice (CPo) could use social networks, supported self-care apps and videos. An integrative review was carried out in all six stages, with a timeline search between 2010 and 2021 in the LILACS, PUBMED, CINAHL, SCOPUS and Web of Science databases. After analyzing 314 articles, the 17 articles included in the sample were explored in 4 categories, still using the framework of the social scientist Étienne Wenger, who coined the term CPo. Thus, there were only informal networks and not communities of practice, nor synchronous use of technological resources in them, so community patterns were sought in existing informal networks, considering the benefits generated for people with ostomy and caregivers when accessing videos, applications and software from future communities of practice. Finally, the seven principles to cultivate them for the profile studied are exposed, relying on the existing informal networks and a research agenda around this unexplored nationally and internationally.