Understanding Autism: Sikh Caregivers’ Perceptions on Autism

Abstract

This study investigates the experiences and perspectives of Sikh caregivers of autistic children with respect to cultural awareness and educational support. Existing literature indicates that caregivers of autistic children already face systemic barriers in accessing appropriate services, and that for minoritized populations is often compounded. Data from a survey (n = 113) and focus groups (n = 11) in this study reveal a significant gap in autism knowledge between Sikh caregivers own beliefs and those that they perceive to be held broadly by the Sikh community. The results echo previous similar diaspora-related research, highlighting persistent cultural stigma and misconceptions surrounding autism, as well as language barriers and a lack of culturally relevant community resources. These challenges often hinder caregivers’ access to support services. This study underscores the need for cultural competence in educational practices and increased community awareness to foster understanding and improve support for autistic individuals and their caregivers within the Sikh community.