Participant perspectives on online interventions for diverse caregivers of persons living with dementia

Abstract

INTRODUCTION: The evidentiary base for dementia caregiver programs is still emerging and is less clear for diverse racial and ethnic minoritized populations. We explored in-depth perspectives about program participation, acceptability, and recommendations from diverse caregivers who completed one of three versions of the Savvy Caregiver Program. METHODS: We conducted 19 focus groups with 92 caregivers who participated in an online version of the Savvy Caregiver Program (Savvy Caregiver Program, Savvy Express, and Unidos en el Cuidado, a Spanish-language version). Data were analyzed with thematic analysis. RESULTS: Caregivers reported positive appraisals of the program's acceptability. Time constraints and a desire for more peer interaction were prominent. Key themes included programmatic features, cultural and gender considerations, program and research participation, and suggestions for improvement. DISCUSSION: Our findings can inform programmatic improvements to future interventions for family caregivers of persons living with dementia, applicable to both online and on-site settings. Highlights: Diverse caregivers report positive experiences in online dementia caregiving interventions. Key takeaways include dementia knowledge, self-care, and caregiving strategies. Cultural and gender considerations highlight gaps in caregiver program representation. Participants suggest expanding discussion time and offering follow-up sessions.