Changes in Child Behaviour Following a Brief Parenting Intervention (Triple P) for Families of Children with Phenylketonuria (PKU): A Case Series

Abstract

Evaluating psychosocial outcomes in families of children with chronic health conditions is complicated by heterogeneity in impact across and within conditions. This study used goal attainment scaling to assess individual families’ progress towards child behaviour goals following brief parenting support for families of children (2–11 years) with phenylketonuria (PKU). Twelve hospital-recruited families nominated up to two behaviour goals and completed baseline monitoring before attending two 2-hr Healthy Living Triple P group sessions. Monitoring was repeated at 4-weeks post-intervention and 4-month follow-up. Families reported partial or complete success on 20 of 23 goals by follow-up. Nine goals were PKU-related, focusing on formula intake for younger children and dietary independence for older children; 14 were general, targeting aggression/non-compliance in younger children, with older children’s goals more varied. Goal attainment scaling is feasible and effective for monitoring progress towards individually tailored child behaviour goals, with potential applications in research and clinical care.