Conceptual framework for support of caregivers of children diagnosed with intellectual disabilities in Gauteng

Abstract

Background: Caregivers of children diagnosed with intellectual disabilities in the Gauteng province face numerous challenges while caring for children. Their needs are not met. There is lack of support for caregivers and no existing conceptual framework of support. There was therefore a need to develop a conceptual framework of support for caregivers. Objectives: The purpose of this study was to develop a conceptual framework of support for caregivers of children diagnosed with intellectual disabilities in the Gauteng province. Method: Three phases were followed: an empirical phase, a classification of concepts and a development phase. A conceptual framework was developed based on the results of the empirical phase, after concepts were classified. Results: The conceptual framework of support for caregivers of children diagnosed with intellectual disabilities in the Gauteng province was developed, consisting of six components, namely agents, recipients, context, procedures, dynamics and terminus. Conclusion: A framework will guide all stakeholders on how to support caregivers of children diagnosed with intellectual disabilities in the Gauteng province. Contribution: The framework serves as a guide for future studies aiming at developing support programmes and models for caregivers, and further provide guidance on how caregivers can effectively be supported when used in mental healthcare institutions.