Perceptions of children's participation as patients in health interactions

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Abstract

Children who actively participate in their health interactions benefit from greater likelihood of better health outcomes, and development of competency, autonomy and decision-making skills. However, children are often passive participants in their health care. This study aims to improve understandings of child patients', parents' and health professionals' perceptions of children's participation as patients in health interactions, through a theoretical framework of child-centred care. An exploratory, qualitative design using a story completion method was used. Participants (28 children, 22 parents and 17 health professionals) constructed stories about a child patient's medical appointment. Data were analysed using reflexive thematic analysis. Findings are discussed in relation to the themes of (1) children's willingness to participate, and (2) what doctors were perceived to be focussed on. Findings suggest that health professionals might require training to develop child-specific communication skills. Health care organisations should consider implementation of child-centred care principles in every aspect of services they provide.

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APA

Jones, K., & Scholz, B. (2025). Perceptions of children’s participation as patients in health interactions. Children and Society, 39(1), 193–207. https://doi.org/10.1111/chso.12907

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